Chronically ill 24/7
When you're diagnosed with a chronic disease it makes an impact on your life. It could make a big difference or just demand some minor adjustments but the bottom line is that it changes your life for ever. I know it did for me, and not only once but several times.
If your diagnosis comes with chronic pain, your life will be deeply affected. Not just by the pain itself, but with the energy loss that's one of the side effects. There's of course different kinds of pain but it doesn't matter how mild it is when it's constantly there.
Yes, you get used to it, but it never stops draining you on energy. You're constantly tired and even more so since you often can't sleep because of the pains. It’s the vicious circle of chronic pain. Just the thought of suffering some kind of pain 24/7 for the rest of your life since there is no cure is tiring, if not unbearably depressing.
You are of course allowed to feel sad and depressed, but you don’t want it to go too far, you don’t want to have to deal with a serious depression on top of everything else. In these circumstances you really need to surround yourself with family and friends, people who really understand your situation on all levels. To have a stable health care team is also very important.
Another thing is that your personality may slightly change, you can become more irritable and moody and it's important that people around you are aware of why you're suddenly behaving in a totally different way. Don't be hesitant to tell your friends and co workers. The difficult thing is that sometimes you might not even be aware of your changed behaviour yourself. That's why it's so important to have your family and close friends involved from the beginning.
So whatever you do...don't isolate yourself.
If your diagnosis comes with chronic pain, your life will be deeply affected. Not just by the pain itself, but with the energy loss that's one of the side effects. There's of course different kinds of pain but it doesn't matter how mild it is when it's constantly there.
Yes, you get used to it, but it never stops draining you on energy. You're constantly tired and even more so since you often can't sleep because of the pains. It’s the vicious circle of chronic pain. Just the thought of suffering some kind of pain 24/7 for the rest of your life since there is no cure is tiring, if not unbearably depressing.
You are of course allowed to feel sad and depressed, but you don’t want it to go too far, you don’t want to have to deal with a serious depression on top of everything else. In these circumstances you really need to surround yourself with family and friends, people who really understand your situation on all levels. To have a stable health care team is also very important.
Another thing is that your personality may slightly change, you can become more irritable and moody and it's important that people around you are aware of why you're suddenly behaving in a totally different way. Don't be hesitant to tell your friends and co workers. The difficult thing is that sometimes you might not even be aware of your changed behaviour yourself. That's why it's so important to have your family and close friends involved from the beginning.
So whatever you do...don't isolate yourself.
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